Discussion with the CoIN Study Team

With the recent distribution of the CoIN Study final survey, the CoIN Study team reflects on the past year since the study began. We are very excited to see what we discover from analysing survey responses and interviews of parents' experiences during the Covid-19 pandemic.


We are extremely grateful to all of the families in the CoIN Study community who have allowed us an insight into what life has been like for them while caring for a child with a rare neurogenetic disorder during a pandemic.