Preliminary Findings

Please see below for our preliminary findings.

Thank you to all those who have completed the CoIN Study survey so far! Not had a chance to complete it yet? It’s not too late!


As lockdown eases and schools start back, it is vital that we hear the voice of families of children with rare disorders. 



Over 150 parents of children with rare conditions have completed our first survey so far. See the map to see where in the UK our families have participated from.

Christmas Update

Please see below for our Christmas Newsletter. 

Read about what we have been up to and our plans for 2021. 

©2020 by CoIN Study.